Advocating for Maryland’s Sickle Cell Community
For over 20 years, the Sickle Cell Coalition of Maryland and the Maryland Alliance for Advocacy for Sickle Cell “MAASC” have worked together to ensure that every sickle cell warrior in Maryland has access to quality care, innovative treatments, and strong support. We turn the voices of patients and caregivers into real policy change at the Maryland General Assembly.
Maryland Alliance for Sickle Cell (MAASC): A Strategy for Advancing Care and Equity
The Maryland Alliance for Sickle Cell is committed to ensuring every sickle cell warrior in Maryland—regardless of ZIP code, insurance, or background—has access to compassionate, high-quality, and bias-free care.
Our strategy includes:
- Setting clear care standards statewide
- Expanding Medicaid for specialized treatments
- Investing in new centers in underserved areas
- Training providers to eliminate bias
- Partnering with state legislators to advance supportive policies
Together, we’re building a more equitable healthcare system for Maryland’s sickle cell community.
Speak Up, Act Now
Advocacy for the 2026–2027 Legislative Session!
Stay tuned for our 2026 announcement as we prepare to advocate during the 2026–2027 legislative session to drive policy change and highlight the urgent needs of Maryland’s sickle cell community.
Advocating for Sickle Cell Disease at the maryland general assembly
Each year, we head to Annapolis to meet with senators and delegates to secure vital funding and improve policies for those living with sickle cell disease
Amplify Your Voice:
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Coming Soon!!
Are you a high school or university student passionate about government, policy, sickle cell advocacy, and making a real impact in your community?
Scripting Change — Youth Transforming Maryland SCD Policy Initiative is launching soon! Applications will open shortly—sign up now to be the first to receive updates and application details.
Our Focus
In partnership with national organizations like SCDAA, Sick Cells, NORD, and the EveryLife Foundation for Rare Diseases, we identify the barriers, gaps, and research needs impacting the sickle cell community. These insights drive the strategies we present to federal lawmakers to advance meaningful change.
We engage community members throughout Maryland, guiding them to craft their stories, understand the facts, and gain confidence—empowering them to become advocates who comfortably share their experiences with legislators.
After community advocates raise their voices, advocates and members of Congress collaborate to draft bills. The resulting laws and policies bring meaningful, lasting improvements in healthcare access, research funding, and quality of life for individuals and families affected by sickle cell disease. Together, these efforts are shaping a healthier future for the community—and you can help make a difference
Give Hope. Fund A Cure.
Fight Sickle Cell. Be a Lifeline
For Sickle Cell Warriors!
Every gift helps a warrior reach graduation, opens the door to better care for our community, and supports families affected by sickle cell disease. Your support empowers sickle cell warriors to thrive. Join us in the fight together, we create real change.
Get Informed • Take Action • Advocate. Join the Fight — Sign for Updates
